Heart Week: On Being Brave

TweetToday is the first day of Congenital Heart Defect (CHD) Awareness Week. (Feb 7th-14th).  I think you’re all pretty aware of my daughter’s CHD. I’ve told so much of her story. I wanted to share something new. Everyone marvels at how brave heart babies are. It’s true,….mostly. Mine is now 8 yrs old. A few days ago, I had to take the kids (except my heart baby, S)  to the dentist. We were getting ready to go and S came over with this huge smile on her face and asked,…

Read More

I Learned how to Heart Mom from My Mom

I’ve always had an insatiable desire to know why. It defines me. Except the one time it doesn’t. I’ve never wondered why my youngest was born with congenital heart defects. I have sobbed and plead with God for her safety. But, despite my inquisitive disposition, never asked Him why. Never yelled or screamed or kicked against Him. It may seem out of character unless you know my mom.

Read More

Her Perfect Broken Heart

We’re not waiting for a grand cure. There is so much more that can be done now. Quality of life, medications, after-surgery care, in-school needs, eating issues, prevention, 3D printing. If you can’t decide where to donate ask. Ask me or ask other CHD-moms you know. We are too many.
Please help.

Read More

How to Budget for Medical Expenses

TweetThis is one of my biggest questions–how do you deal with medical bills (especially when you’re making too much money to qualify for medicaid/SSI assistance, but not quite enough to cover your medical bills.) Start by budgeting for your maximum medical expenses. How is your normal insurance? What is your deductible?  How much is your maximum out of pocket? Figure out your total maximum cost: Deductible plus max out of pocket divided by 12. [ex: deductible=$2000 max oop=$4500. max cost/12=$6500/12=$542.] So your max medical expense would be $542/month. Subtract $100-$200…

Read More

CHD infographic

TweetA nurse just sent me this infographic, and I thought you all would like it: Source: Top Nursing Programs Go check out their page – it will show you how to embed this infographic on your own webpages!

Read More