CHD Facts and Figures

  1. Congenital Heart Defect (CHD) is a malformation in the heart muscle present at birth.
  2. 2 million Americans are living with CHDs
  3. Each year 40,000 more US babies will be born with CHDs.  8,000 of them won’t live to see their first birthday
  4. Each year over 1,000,000 babies are born worldwide with a CHD.  100,000 of them will not live to see their first birthday.
  5. CHD is the most common and most lethal birth defect–both in the USA and throughout the world.
  6. The American Heart Association gives less than one penny per dollar raised to fight CHDs.
  7. 1 in 100 babies has a heart defect.  CHDs are as common as autism, but receive less research funding.
  8. 10% of all CHD cases evaluated in an Adult CHD clinic are first diagnosed in adulthood
  9. In the USA, twice as many children die from CHDs each year than from all forms of childhood cancer combined.
  10. Congenital Heart Defects are common and deadly, yet CHD research is grossly under-funded relative to the prevalence of the disease.
  11. More than 50% of all children born with congenital heart defects will require at least one invasive surgery in their lifetime.
  12. CHDs are the #1 cause of birth defected related deaths.
  13. In the last decade, death rates for congenital heart defects have declined by almost 30% due to advances made through research.
  14. The cost for inpatient surgery to repair congenital heart defects exceeds $2.2 billion per year.
  15. There are more than 40 different types of CHDs.  Little is known about the cause of most of them.  There is no known prevention or cure for any of them.

Sources: the Children’s Heart Foundation, the American Heart Association.

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