I’ve always had an insatiable desire to know why. It defines me. Except the one time it doesn’t. I’ve never wondered why my youngest was born with congenital heart defects. I have sobbed and plead with God for her safety. But, despite my inquisitive disposition, never asked Him why. Never yelled or screamed or kicked against Him. It may seem out of character unless you know my mom.
We’re not waiting for a grand cure. There is so much more that can be done now. Quality of life, medications, after-surgery care, in-school needs, eating issues, prevention, 3D printing. If you can’t decide where to donate ask. Ask me or ask other CHD-moms you know. We are too many.
I greet you with a mixture of loving kinship and quiet sorrow. Thinking back to when I first became a heart mom, I should have so many things to say.