TweetToday is the first day of Congenital Heart Defect (CHD) Awareness Week. (Feb 7th-14th). I think you’re all pretty aware of my daughter’s CHD. I’ve told so much of her story. I wanted to share something new. Everyone marvels at …..
I’ve always had an insatiable desire to know why. It defines me. Except the one time it doesn’t. I’ve never wondered why my youngest was born with congenital heart defects. I have sobbed and plead with God for her safety. But, despite my inquisitive disposition, never asked Him why. Never yelled or screamed or kicked against Him. It may seem out of character unless you know my mom.
We’re not waiting for a grand cure. There is so much more that can be done now. Quality of life, medications, after-surgery care, in-school needs, eating issues, prevention, 3D printing. If you can’t decide where to donate ask. Ask me or ask other CHD-moms you know. We are too many.